As an IRS-registered 501(c)(3) organization, No Baby Blisters says contributions made toward assisting families dealing with EB can be deducted in full or in part, with funds directed toward essential medical supplies, treatment support, and ongoing research efforts.
More details can be found at https://nobabyblisters.org/donate-ultraswift/
The announcement comes amid ongoing challenges surrounding EB, a rare genetic skin disorder that affects an estimated 500,000 children globally. The condition causes the skin to blister and tear from minor friction, often leading to severe pain, infection, and in extreme cases, early death. Due to its rarity, the condition remains underfunded and medically underserved, leaving many families without consistent access to care.
No Baby Blisters states that donations are directed toward immediate support where it is most needed, including bandages, pain medications, and surgical assistance. The organization notes that every contribution matters, regardless of size — a $30 donation, it says, can help cover up to 12 days of pain medication for a child, while smaller recurring gifts add up to meaningful ongoing support for families managing the condition.
"Families facing EB are often navigating both medical and financial strain at the same time," said founder Aaron Tabor, MD. "Our goal is to make sure support reaches them quickly, so children are not left without the care they need."
In addition to direct assistance, the organization supports research initiatives aimed at developing long-term treatment options. Its work has been referenced in peer-reviewed literature, reflecting ongoing efforts to better understand and address the condition.
Donors can choose between one-time contributions or recurring monthly support through the organization's Hero Guardian Angel program. No Baby Blisters notes that funds from this program are distributed directly to families, helping ensure that resources reach those managing the day-to-day realities of EB.
Dr. Tabor, an NIH-funded skin researcher and founder of GENIEXO, says the organization's approach is shaped by both clinical insight and direct engagement with affected families. "There is still a significant gap in funding and awareness for rare conditions like EB," he said. "We're working to close that gap by connecting research, resources, and real-world support."
Founded to provide immediate assistance and advance research for children with EB and related conditions, No Baby Blisters continues to focus on delivering practical aid while contributing to broader treatment development efforts.
Those interested in supporting the organization or learning more about its programs can visit https://nobabyblisters.org/donate-ultraswift